Posted in Blog

A New Found Confidence

I’m currently working on a Research Project on invisible disabilities, particularly discrimination and disability hierarchy theory (which off the top of my head I can’t remember who came up with, but the research behind the theory proves that society shows more empathy towards visible disabilities). 

I had a seizure on Sunday afternoon and therefore spent the rest of the day in bed recovering. It’s now 5.17am on Monday morning and instead of sleeping, I’m wide awake because I spent the day sleeping off the post-seizure migraine.

A LOT has happened this weekend – too much for me to get into right now – to trigger that seizure, because of society’s ignorance, causing me to feel like I’m not wanted. So when I saw this quote, I just had to share:

Quite frankly, I do not give a damn what you think, or whether or not you believe I’m sick because “I don’t look it”. 

It’s not my job to fix your stupidity. 

But one day, you will need me to complete your picture. 

Author:

I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

7 thoughts on “A New Found Confidence

    1. Thank you, doing better today.
      It just amazes me that people show more sympathy for visible Disabilities. In my prep for my research study, I came across an IAT which measured people’s implicit attitudes towards disabilities and they showed more sympathies towards people in wheelchairs and people with cancer, whereas less towards those with Mental health issues 😢

      1. Like, I went to get my hair done last week and one of the hairdressers’ said her partner has Epilepsy too, but she thinks he’s lazy because he doesn’t do much because of his seizures. She wasn’t being rude, he just doesn’t talk to her. She also couldn’t understand my frustration about the TFL blue badge thing, so people see me with this Disability badge but because they see me walking and standing they don’t offer me a seat and she said well why should I, for those exact reasons. When I explained to her what happened to your muscles for days, sometimes weeks after a seizure she was so shocked and apologised.
        I think she’ll even look at her partner differently too 🤔

      2. Wow!!! That’s insane the poor bloke! I didn’t know you could get a blue badge for it but can imagine the looks you’d get! My father in law had cancer a few years back but had his badge for a while after he finished chemo – he always got shitty looks but probably because he drives a bright orange Ford Focus 😂

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