Posted in Blog

When Will It End?

Sometimes, I don’t know who I am anymore.

Some days I wake up, work on MSc, do some blogging, etc etc. Yes, I’ve got it together!

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But then, some nights, my anxiety is through the roof and I cannot shut my brain off, while some days it’s completely silently dead and I cannot move, so I stay in bed all day – on days like today, where I slept my life away.

I’ve gained weight because I’m no longer as active as I used to be, and I’m not vocal about it bothering me, but it does bother me, especially when I used to be bulimic. I fantasise about making myself sick, but I can’t because I have to cling to to those stupid pills that stop the seizures. So I just watch the weight gain every morning in the mirror instead.

I’ve spent an entire week arguing with my employer, trying to arrange an afternoon to collect my belongings from my old desk. I have nothing that belongs to them, because when they escorted me from the premises like a criminal for standing up to racism and disability discrimination, I was instructed not to take anything with me, so they have everything of mine and I have nothing of their’s. With the dire state in which the education system is in, I had to buy my students stationery to use in my lessons, so I spent a fortune on supplies which I had to leave, and which have been sitting at my old desk since May. My employer have spent a week at first trying to convince me that I had already collected the supplies (I haven’t), and then refusing to set a date. This was supposed to be the job of my Union Representative, who was far too lazy to do his job. At four in the morning on Wednesday, I finally emailed him and told him to do his job, and now I’ll be going in on Monday to collect my things.

These people are sick. 

Oh, and my Union Representative also sent me a copy of the Settlement Agreement I was forced to sign, (legally binding me to keep schtum about the name of my employer, as well as stopping me from suing their asses) with a coffee stain on it. When I pointed this out to him, he apologised, claiming that he hadn’t noticed before he posted it to me.

The coffee stain to me, was a visual gesture of what these people think of me, of how poorly they value me as a person.

Which is fine, because I feel exactly the same.

However, I still have to live with the damage. I’ve now moved to an area in London where my two nearest tube stations have no step free access, so if I have to travel during my postictal state (post-seizure), I’m screwed. Last week, I went to The Pink Floyd Exhibition at The V&A Museum, (aaaaamazballs by the way. I cried at it’s celestial-ness!), however I had to change at Green Park station. For anybody who lives in London, and has regularly done the interchange at that station, or even encountered it a few times, you’ll know it’s a lengthy process. Even at my fittest, I’d avoid it just to save time! Last week it killed me. I had to do this journey postictal (the tickets were pre-booked and non-refundable) and I’m currently at my unfittest. It was worth it for the exhibition, however I massively paid for it, both mentally and physically for days afterwards.

I’m trying to get over the mental damage, however knowing that there may have been a different outcome if I had been white, is a bigger pill to swallow than any of my anti-depressants or AEDS.

Self-care is so important. Yesterday, while lying in bed and feeling rubbish about doing so instead of research for my latest assignment, I stumbled upon thread about self-care on Twitter. Such simple steps: 

  • Getting out of bed (always a good start!) 
  • Drinking water – it is so important to keep hydrated, not just when you have epilepsy and you’re on AEDs, but also when your mood is low
  • Doing something other than what you HAVE you do – so we’ve just moved, and I’ve been putting off unpacking for ages, because of my MSc. Yesterday I decided to just put some music on and unpack. A flat full of boxes is so unhealthy for your mental health anyway. It’s like living out of a suitcase but worse! 
  • Take a shower. So after all of that unpacking, I was pretty sweaty anyway. Again, I put some music on really loud, had the bathroom door open as I was home alone and took the longest shower I’d EVER taken. It was glorious! Back in the day, before I was ever in a relationship, I would go days in bed, without showering, never changing my underwear, festering in my darkest thoughts. Not good. If you’re too weak to stand, treat yourself to a bath – you fucking deserve it you beautiful biatch ❤️
  • Read a good book. The best thing about not being an English teacher anymore, is that I get to read whatever I want, because I’m no longer constrained to the curriculum! Glorious! At the moment I’m reading Assata Shakur’s autobiography “Assata: An Autobiography” which I highly recommend. One thing I’m also trying to do, is getting into a routine of reading in bed, in order to calm my brain down. 

Anyway, these are just my suggestions, mixed with some I’ve come across. Life is tough, but we can’t give up right? 

XOXO

Author:

My body remains on the sidelines watching, while my mind roams around the room, taking in the world around her. I am a wallflower. There could be two reasons for this: It could be due to me being an introvert or just that I am a Cancerian! I’m Cece Alexandra and I am so honoured that you’ve been led to delve into my thoughts here in this blog! I would describe myself as a Wallflower which is why I use words to express my deepest – and sometimes darkest - thoughts. Words have always been my strongest method of expressing myself. Growing up I always wanted to be a writer, however life and circumstances chipped away at my confidence until there was nothing left. Without words, I could no longer express myself. I am also Epileptic. Since being diagnosed, I have realised that my deepest fear is the day I am finally on my deathbed, haunted by the overwhelming regret that I never achieved my God-given potential. This realisation forced me to take a step of faith and put myself out there. Yes it makes me vulnerable, however within the process I not only want to be an inspiration to myself; I want to be an inspiration to other women – to be whatever you want to be. Embrace the fear and doubt and utilise that as the fuel you need to push through! Life is for living to the fullest. Life is for loving, for living true to yourself and to the people around you. Life however, can also be crippling, dark and overwhelming. But you are not alone. This thought alone is what will help you get up from the ground.

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