Posted in Blog

More Epilepsy and Periods

Following my last post I’ve had mixed reviews.

Most have been fantastic!

“It’s your body! Your choice! Wooooo!”

However, I was surprised by a couple of women who were very dismissive of my post. These women also have Epilepsy, which is why I was all the more surprised and now I feel like I have to justify myself:

 

  1. My periods destroy me. I work in a job where I cannot afford to be sick – not just because of the economic climate we live in, but because my absence affects the people I work with, and the people I work for. My periods have a direct effect upon my Epilepsy: they cause me extra anxiety, severe pain, loss of appetite and nausea/ vomiting, dehydration, tiredness – all things which trigger seizures anyway. However, they also cause disruption to my sleep which also triggers seizures.
  2. A hysterectomy may not put an end to my seizures completely because I’m NOT claiming to have catamenial Epilepsy (as somebody thought that i was). I just want to do something to help so this from happening to me.

 

Finally, my boyfriend (who will kill me for sharing this but this is the price you pay for dating a blogger biatch) was afraid that I came across as sounding very Nazist when it sounded like I was dictating who and who shouldn’t have children.

Let me make this clear: this blog is not a place for propaganda. However, I stand by my words when I say that my parents were fucked up and fucked up big time by having a family.

 

I don’t know where my Epilepsy comes from, however there is a chance that it could be hereditary because my uncle has had tonic clonic seizures while under major life stresses. I couldn’t live with myself knowing that I had passed this disease on to my own child(ren).

 

There is a chance that it isn’t hereditary though. How knows with this stupid mysterious illness?

 

Going back to seizures during your period, they really are the worst: I feel like I’ve lost a week of my life to nothingness. Apart from that one day I had off, I managed to make it into work however I made so many mistakes my existence felt pointless.

I do realise that I am being hard on myself.

And there could be other options.

Perhaps I’m being too manically decisive….

 

… And this is probably another reason why I shouldn’t have any children lol…

 

 

Author:

I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

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