Posted in Blog

Zonegran: Take Two


Tonight begins my new quest to find seizure-free territory as I increase the dose of my Zonegran, so I’m now on 100mg a day.

Yesterday I had three seizures, one after the other.

I had to cancel plans to see my bff, who I haven’t seen since before Christmas, and spent the rest of the day in bed.

I know the trigger this time for definite… On Thursday I forgot to take my medication and went all day without ANYTHING in my system. Unfortunately Thursday was also an exhaustingly long day at work, therefore I didn’t get home until after 8pm, meaning that I’d gone 24 hours without any medication. I cried myself to sleep on Saturday because I only had myself to blame for being so careless. In the three years since I’ve been on medication, I’ve only ever forgotten to take my meds to work twice (including Thursday)…

… So I shouldn’t be too hard on myself…

… By the way, not ALL of those pills in the picture are AEDs! Some are also vitamins. I’ve been putting vitamins into my pill boxes so that I remember to take them everyday, and I’m not sure if it’s that, or the fact that I’ve reduced the Keppra, but lately I haven’t been feeling like a zombie! In fact, very much NOT like a zombie.

Zonegran could still be “The One” 💜💜💜



I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

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