Posted in Blog

Zonegran: Launch Night

Tonight is “Launch Night”.

So now I’ve tried Lamotrigine, Oxcarbazepine and Levetiracetam (aka Keppra). Although the Keppra has been great in preventing my generalised seizures (seizures which affect the whole brain and cause more visual jerks etc), it has failed miserably in preventing my complex partial seizures (the ones that make me leave the room mid-convo). I’m having at least 2 or 3 complex partial seizures a week on average.

From tonight I’m now taking Zonegran alongside the Keppra in the hopes of slowly reducing the latter as I increase the new drug into my system.

My epilepsy consultant is a firm believer in monotherapy – as am I – so the goal is to have my seizures controlled by one drug, and one drug only. (Please let Zonegran be “The One”.)

Life on Keppra has been hell and this is far from being any kind of hyperbole.

The fogginess, the sometimes constant lethargic state and the overwhelming disappointment that it didn’t work as a monotherapy. Hell. When I was first prescribed Keppra, my first thought was “yes! Loads of people are on Keppra, this is a step in the right direction.”

I do also remember feeling grief, for reality hit me that this was serious shit; I was moving onto the hard stuff now.

I’ll be off work for the next week while my body gets used to the Zonegran (as well as over the seizures I’ve been having over the last few days while still recovering from this ghastly flu). Therefore, I’ll be taking the opportunity to blog my first week on Zonegran to keep you all updated on my progress.

I’m trying to be optimistic, as I always am at the beginning of my new drug voyages. However, this new journey carries a significant weight of apprehension as my professional career depends upon this drug changing the current status of my health.

Employers are not kind to weakness, and I need to find strength from all sources at the moment…

zonegran

So fingers crossed!

xoxo

P.s. I read that one of the side effects for Zonegran is weight loss #WIN!

P.p.s. I bought myself a German pill box to bring some pizzazz into my drugtaking lol.

Author:

I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

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