Posted in Blog

Zonegran: Launch Night

Tonight is “Launch Night”.

So now I’ve tried Lamotrigine, Oxcarbazepine and Levetiracetam (aka Keppra). Although the Keppra has been great in preventing my generalised seizures (seizures which affect the whole brain and cause more visual jerks etc), it has failed miserably in preventing my complex partial seizures (the ones that make me leave the room mid-convo). I’m having at least 2 or 3 complex partial seizures a week on average.

From tonight I’m now taking Zonegran alongside the Keppra in the hopes of slowly reducing the latter as I increase the new drug into my system.

My epilepsy consultant is a firm believer in monotherapy – as am I – so the goal is to have my seizures controlled by one drug, and one drug only. (Please let Zonegran be “The One”.)

Life on Keppra has been hell and this is far from being any kind of hyperbole.

The fogginess, the sometimes constant lethargic state and the overwhelming disappointment that it didn’t work as a monotherapy. Hell. When I was first prescribed Keppra, my first thought was “yes! Loads of people are on Keppra, this is a step in the right direction.”

I do also remember feeling grief, for reality hit me that this was serious shit; I was moving onto the hard stuff now.

I’ll be off work for the next week while my body gets used to the Zonegran (as well as over the seizures I’ve been having over the last few days while still recovering from this ghastly flu). Therefore, I’ll be taking the opportunity to blog my first week on Zonegran to keep you all updated on my progress.

I’m trying to be optimistic, as I always am at the beginning of my new drug voyages. However, this new journey carries a significant weight of apprehension as my professional career depends upon this drug changing the current status of my health.

Employers are not kind to weakness, and I need to find strength from all sources at the moment…

zonegran

So fingers crossed!

xoxo

P.s. I read that one of the side effects for Zonegran is weight loss #WIN!

P.p.s. I bought myself a German pill box to bring some pizzazz into my drugtaking lol.

Author:

My body remains on the sidelines watching, while my mind roams around the room, taking in the world around her. I am a wallflower. There could be two reasons for this: It could be due to me being an introvert or just that I am a Cancerian! I’m Cece Alexandra and I am so honoured that you’ve been led to delve into my thoughts here in this blog! I would describe myself as a Wallflower which is why I use words to express my deepest – and sometimes darkest - thoughts. Words have always been my strongest method of expressing myself. Growing up I always wanted to be a writer, however life and circumstances chipped away at my confidence until there was nothing left. Without words, I could no longer express myself. I am also Epileptic. Since being diagnosed, I have realised that my deepest fear is the day I am finally on my deathbed, haunted by the overwhelming regret that I never achieved my God-given potential. This realisation forced me to take a step of faith and put myself out there. Yes it makes me vulnerable, however within the process I not only want to be an inspiration to myself; I want to be an inspiration to other women – to be whatever you want to be. Embrace the fear and doubt and utilise that as the fuel you need to push through! Life is for living to the fullest. Life is for loving, for living true to yourself and to the people around you. Life however, can also be crippling, dark and overwhelming. But you are not alone. This thought alone is what will help you get up from the ground.

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