Posted in Blog

Attention!

Sadiq Khan: Epilepsy Awareness on public transport – Sign the Petition! https://t.co/KugQcLndvK via @UKChange

I’ve just started an online petition. Yesterday I had a seizure on a bus. I lost control of my legs and fell down. I couldn’t speak or move. Nobody helped me. Before you ask: yes I was wearing my medical alert bracelet. I was out for awhile because I missed my stop on the bus and when I eventually came round, I had to pick myself up off of the floor and get myself back to where I’d wanted to go. Luckily I was on my way to meeting Folasade Akinyeye so I wasn’t alone for very long.

However, you all know that this is not the first time that I have been left to look after myself during a seizure on public transport. This seizure was so bad that when I came to, I found my phone in my hand with an unfinished message to my boyfriend Pascal Germroth to let him know what was happening but I was unable to finish it.
I cannot believe that people just walked by / looked on while I was in clear distress and did nothing to help me.
Just last week, I was publicly humiliated on a bus by an elderly man for sitting in the priority seats. He said that I had no right to be sitting in those seats and that I should move – again, I was wearing my medical alert bracelet, I was visibly unwell as I had just had a seizure, and yet this man refused to acknowledge any of these factors.
It’s time we stopped judging epileptics and more needs to be done by TfL to raise awareness. We need posters on buses, tubes and trains so that passengers are aware of the signals and symptoms; epileptics should be given badges to wear; TfL workers should be trained to look after epileptics so that they know what to do when we have seizures on their buses / trains.
People like me are not just being let down by the public; in London we’re being let down by TfL and our Mayor, Sadiq Khan.
We are disabled and entitled to access transport just as much as other disabled people. Just because you cannot see our suffering, doesn’t mean that we are not in fact suffering.
Please sign this petitionIMG_20161228_151807.jpgShare with everybody you know and help me get the attention I deserve.
Thank you xoxo

Author:

My body remains on the sidelines watching, while my mind roams around the room, taking in the world around her. I am a wallflower. There could be two reasons for this: It could be due to me being an introvert or just that I am a Cancerian! I’m Cece Alexandra and I am so honoured that you’ve been led to delve into my thoughts here in this blog! I would describe myself as a Wallflower which is why I use words to express my deepest – and sometimes darkest - thoughts. Words have always been my strongest method of expressing myself. Growing up I always wanted to be a writer, however life and circumstances chipped away at my confidence until there was nothing left. Without words, I could no longer express myself. I am also Epileptic. Since being diagnosed, I have realised that my deepest fear is the day I am finally on my deathbed, haunted by the overwhelming regret that I never achieved my God-given potential. This realisation forced me to take a step of faith and put myself out there. Yes it makes me vulnerable, however within the process I not only want to be an inspiration to myself; I want to be an inspiration to other women – to be whatever you want to be. Embrace the fear and doubt and utilise that as the fuel you need to push through! Life is for living to the fullest. Life is for loving, for living true to yourself and to the people around you. Life however, can also be crippling, dark and overwhelming. But you are not alone. This thought alone is what will help you get up from the ground.

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