Posted in Blog

Attention!

Sadiq Khan: Epilepsy Awareness on public transport – Sign the Petition! https://t.co/KugQcLndvK via @UKChange

I’ve just started an online petition. Yesterday I had a seizure on a bus. I lost control of my legs and fell down. I couldn’t speak or move. Nobody helped me. Before you ask: yes I was wearing my medical alert bracelet. I was out for awhile because I missed my stop on the bus and when I eventually came round, I had to pick myself up off of the floor and get myself back to where I’d wanted to go. Luckily I was on my way to meeting Folasade Akinyeye so I wasn’t alone for very long.

However, you all know that this is not the first time that I have been left to look after myself during a seizure on public transport. This seizure was so bad that when I came to, I found my phone in my hand with an unfinished message to my boyfriend Pascal Germroth to let him know what was happening but I was unable to finish it.
I cannot believe that people just walked by / looked on while I was in clear distress and did nothing to help me.
Just last week, I was publicly humiliated on a bus by an elderly man for sitting in the priority seats. He said that I had no right to be sitting in those seats and that I should move – again, I was wearing my medical alert bracelet, I was visibly unwell as I had just had a seizure, and yet this man refused to acknowledge any of these factors.
It’s time we stopped judging epileptics and more needs to be done by TfL to raise awareness. We need posters on buses, tubes and trains so that passengers are aware of the signals and symptoms; epileptics should be given badges to wear; TfL workers should be trained to look after epileptics so that they know what to do when we have seizures on their buses / trains.
People like me are not just being let down by the public; in London we’re being let down by TfL and our Mayor, Sadiq Khan.
We are disabled and entitled to access transport just as much as other disabled people. Just because you cannot see our suffering, doesn’t mean that we are not in fact suffering.
Please sign this petitionIMG_20161228_151807.jpgShare with everybody you know and help me get the attention I deserve.
Thank you xoxo

Author:

I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

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