Posted in Blog

I Wonder

It’s time for me to stop being ashamed of the fact that I am different.

Last week I had a generalised seizure (more commonly known as a grand mal). It was four in the morning and I woke up jerking and moving down towards the edge of my bed. I haven’t had a seizure like that in a while; when I was frequently having them back in 2011 and 2013-2014, I was still living at home and would call out for my mum once I came to. Obviously this time I couldn’t do that. I laid awake until my alarm went off and got up and went into work.

I assumed that having slept as soon as I got home and having an early night, I was fully recovered and made the most of my third (?) weekend as a single gal by hanging out with friends and doing stuff for myself. In hindsight, I realise that I was subconsciously pushing myself in order to make a point to myself that I can do everything everybody else can. However, the brand new bike I bought only last month, only ridden three times and now living in the spare room next door to me is a constant reminder whenever I walk past that I’m not like everybody else. I’ve only been able to ride my bike three times because I’m constantly recovering from seizures, or doped up to my eyeballs on AEDs.

I miss running. Today a friend texted to say that they would call me after their run. I immediately felt a pang of jealousy. And rage that I haven’t been able to do that in almost a year. I signed up to run the Great British 10K this month and had to pull out because I was too sick to train. Running gave me energy and last summer I was the fittest I’d been in years; now I just feel like a giant blob! Thankfully I’m still able to fit into my clothes, however I miss my thighs of steel!

I have my moments when I strut through the streets of London to Siouxsie and the Banshees (can I get a hell yeah?!) and as I walk confidently, I am as oblivious as the strangers I pass to my inner demon. However, I can only fool myself for so long?

I worry about work; how long will I be able to continue to work like this? I wonder what kind of quality of life is this? I turn to my 14-year-old self, sitting in the science lab, daydreaming of her adult self and slap her across the face to look at what she will become in 16 years’ time:

“This is you at thirty bitch. This is as good as it gets!”



My body remains on the sidelines watching, while my mind roams around the room, taking in the world around her. I am a wallflower. There could be two reasons for this: It could be due to me being an introvert or just that I am a Cancerian! I’m Cece Alexandra and I am so honoured that you’ve been led to delve into my thoughts here in this blog! I would describe myself as a Wallflower which is why I use words to express my deepest – and sometimes darkest - thoughts. Words have always been my strongest method of expressing myself. Growing up I always wanted to be a writer, however life and circumstances chipped away at my confidence until there was nothing left. Without words, I could no longer express myself. I am also Epileptic. Since being diagnosed, I have realised that my deepest fear is the day I am finally on my deathbed, haunted by the overwhelming regret that I never achieved my God-given potential. This realisation forced me to take a step of faith and put myself out there. Yes it makes me vulnerable, however within the process I not only want to be an inspiration to myself; I want to be an inspiration to other women – to be whatever you want to be. Embrace the fear and doubt and utilise that as the fuel you need to push through! Life is for living to the fullest. Life is for loving, for living true to yourself and to the people around you. Life however, can also be crippling, dark and overwhelming. But you are not alone. This thought alone is what will help you get up from the ground.

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