Posted in Blog

My Reality

Epilepsy makes people uncomfortable.
It scares people.

It’s strange and alien.

It’s demonic.

Some people see the word “epilepsy” as a dirty word.

Like the word “coloured”, people see it as acceptable to call “those things you have” as “fits” because that’s what they’ve always been called.

It doesn’t matter what I feel, or how frightened I am; that I detest being referred to as “possessed“; that people close to me will not call my “demon” by its name for what it is.
Admitting that I have epilepsy is not an admission of weakness – it is my reality. 

Not yours.

This is my condition.

Not yours.

You may be a witness to it, but you’re only the passenger; you can get off the bus anytime you want! However I’m the one stuck at the wheel.

This is my reality. 

Author:

I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

4 thoughts on “My Reality

  1. Make the negativity positive – I was once called a ‘Pavement Raver’ – They meant it in a bad way – I now use it in a positive way to disarm peoples unease with talking to me about my condition, as it is kinda funny! Great post BTW!

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