Posted in Blog

Tired

I’m not sure which I prefer…. Not being able to stay awake past 5pm, or not being able to get out of bed. Ever.

 

I’ve been on both Oxcarbazepine and Levetiracetam for just over a month now. Plus my anti-depressants. And hayfever tablets.

 

A lot of drugs.

 

My mother would have a fit if she knew.

 

My seizures have so far decreased in frequency, which is a dream come true, and the fact that it’s only taken just over two years in order to do this is incredible. At the moment, I’m no longer having generalised seizures and now, as opposed to having multiple complex partial seizures almost every day, I have one perhaps every few days.

 

When I first started taking Oxcarbazepine, I struggled to get out of bed, and I also struggled to get the Oxcarbazepine to control my seizures. Hence the introduction of Levetiracetam, however every dose increase of the Keppra (all the cool kids in the epilepsy circles refer to Levetiracetam by the name “Keppra”) brings a differing type of drowsiness. In the beginning it was struggling to stay awake past 5pm! I would get home from work, perhaps eat something (that’s another thing: the decrease in appetite. At times I was going to bed having barely eaten all day), falling asleep fully clothed and not waking up until the following morning! This would sometimes however pose the risk of missing my evening dose of medication, which could then trigger a seizure the following morning. (Epilepsy always knows how to keep you on your toes!)  And slowly I’m returning to the days of “morning slothness”: where getting out of bed is like trying to drag somebody else’s body out of bed PLUS your own, while gravity pulls you with such force, you feel that moving in itself should become an Olympic sport.

 

And this my friends, is how I’m feeling right now.

 

Oh, and Happy #NationalEpilepsyWeek

Author:

I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

2 thoughts on “Tired

  1. Keppra doesn’t make me feel drowsy, though I have a different type of epilepsy to you. I take it at night though, along with Lamotragine. I take my anti-depressants with breakfast, and try to use my clonazepam as little as possible, which is hard!

  2. I was talking to my GP about this because he said that my anti depressants are supposed to give you energy but I think it’s the combination of taking them all together that’s making me drowsy. Either that or I’m just getting old and using my epilepsy as an excuse to not face up to the grey hairs I see in the mirror Hahahahahahahaha
    What dose of Keppra are you on?

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