I’m not sure which I prefer…. Not being able to stay awake past 5pm, or not being able to get out of bed. Ever.
I’ve been on both Oxcarbazepine and Levetiracetam for just over a month now. Plus my anti-depressants. And hayfever tablets.
A lot of drugs.
My mother would have a fit if she knew.
My seizures have so far decreased in frequency, which is a dream come true, and the fact that it’s only taken just over two years in order to do this is incredible. At the moment, I’m no longer having generalised seizures and now, as opposed to having multiple complex partial seizures almost every day, I have one perhaps every few days.
When I first started taking Oxcarbazepine, I struggled to get out of bed, and I also struggled to get the Oxcarbazepine to control my seizures. Hence the introduction of Levetiracetam, however every dose increase of the Keppra (all the cool kids in the epilepsy circles refer to Levetiracetam by the name “Keppra”) brings a differing type of drowsiness. In the beginning it was struggling to stay awake past 5pm! I would get home from work, perhaps eat something (that’s another thing: the decrease in appetite. At times I was going to bed having barely eaten all day), falling asleep fully clothed and not waking up until the following morning! This would sometimes however pose the risk of missing my evening dose of medication, which could then trigger a seizure the following morning. (Epilepsy always knows how to keep you on your toes!) And slowly I’m returning to the days of “morning slothness”: where getting out of bed is like trying to drag somebody else’s body out of bed PLUS your own, while gravity pulls you with such force, you feel that moving in itself should become an Olympic sport.
And this my friends, is how I’m feeling right now.
Oh, and Happy #NationalEpilepsyWeek