Posted in Blog

EFGLA 2015 Care and Cure Benefit to End Epilepsy Keynote Poem

These words are a beautiful expression of an insight into a world a lot of people outside of that world still struggle to understand


Keynote Poem EFGLA 2015 Care and Cure to End Epilepsy

We all want our children to grow up to be hurricanes, storm chasers, Gods of thunder and movers of the earth. We pack the love notes into their lunchboxes, sign permission slips, shuttle the carpool, do all this knowing so much is out of our hands, that once they leave our eyesight anything could go wrong. We wait for their return, fingers pressed to countertop or hovering over cell phone, eyes on the clock, anticipating the valleys of their voice as they spill out all of the day’s adventures, discoveries, heartaches, denials and successes into our ears.

No one wants to receive the call, wants to hear what happens when your childs brain is the electrical storm, what happens when the world turns all humming glass and scream pitch, the first time the body contorts and thrashes as the minds synapses unbridge themselves and brainwaves become jumping needles. One out…

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I’m Cece Alexandra and I have Epilepsy. Since being diagnosed, my life has changed significantly. After studying and teaching Humanities and Literature for all of my adult life, I was bullied and lost my job a month before qualifying to become an English Teacher. Once you fail the Teacher Training course in England, you cannot ever retrain; I then became too sick to work because of my Epilepsy. I am now currently studying an MSc in Mental Health Psychology with the University of Liverpool. My disability provokes me into raising awareness for invisible disabilities, which I also actively partake in with Epilepsy Action. Part of that awareness is to help fight against invisible disability discrimination - I believe that this behaviour is not cognitively unconscious; modern society is actively partaking in a hierarchy of disabilities and I believe that there is not enough psychological research to prove this. I am also clinically interested in Cultural Psychology - particularly Collectivist Culture, and wish to pursue this further in my academic career.

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