Posted in Blog

EFGLA 2015 Care and Cure Benefit to End Epilepsy Keynote Poem

These words are a beautiful expression of an insight into a world a lot of people outside of that world still struggle to understand


Keynote Poem EFGLA 2015 Care and Cure to End Epilepsy

We all want our children to grow up to be hurricanes, storm chasers, Gods of thunder and movers of the earth. We pack the love notes into their lunchboxes, sign permission slips, shuttle the carpool, do all this knowing so much is out of our hands, that once they leave our eyesight anything could go wrong. We wait for their return, fingers pressed to countertop or hovering over cell phone, eyes on the clock, anticipating the valleys of their voice as they spill out all of the day’s adventures, discoveries, heartaches, denials and successes into our ears.

No one wants to receive the call, wants to hear what happens when your childs brain is the electrical storm, what happens when the world turns all humming glass and scream pitch, the first time the body contorts and thrashes as the minds synapses unbridge themselves and brainwaves become jumping needles. One out…

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My body remains on the sidelines watching, while my mind roams around the room, taking in the world around her. I am a wallflower. There could be two reasons for this: It could be due to me being an introvert or just that I am a Cancerian! I’m Cece Alexandra and I am so honoured that you’ve been led to delve into my thoughts here in this blog! I would describe myself as a Wallflower which is why I use words to express my deepest – and sometimes darkest - thoughts. Words have always been my strongest method of expressing myself. Growing up I always wanted to be a writer, however life and circumstances chipped away at my confidence until there was nothing left. Without words, I could no longer express myself. I am also Epileptic. Since being diagnosed, I have realised that my deepest fear is the day I am finally on my deathbed, haunted by the overwhelming regret that I never achieved my God-given potential. This realisation forced me to take a step of faith and put myself out there. Yes it makes me vulnerable, however within the process I not only want to be an inspiration to myself; I want to be an inspiration to other women – to be whatever you want to be. Embrace the fear and doubt and utilise that as the fuel you need to push through! Life is for living to the fullest. Life is for loving, for living true to yourself and to the people around you. Life however, can also be crippling, dark and overwhelming. But you are not alone. This thought alone is what will help you get up from the ground.

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